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Downloaded from
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Official YIFY movies site:
YTS.MX

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We try to believe that

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the things that we don't
want to encounter in life

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don't exist

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because they're something that happens

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to the other people.

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Poverty doesn't exist

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until you are poor.

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Racism doesn't exist

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until you are discriminated against.

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Sickness doesn't exist

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until the health care system fails you.

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But what happens when you become the other

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and you realize that people don't want
to pay attention to you

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because it disrupts their normal life?

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And so I turned to Sandra and said,

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"I think I want to start
an ALS nonprofit."

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And her response was,

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"#@%* no."

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When your doctor says,

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"I think you need
to get your affairs in order."

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Your mind kind of explodes.

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This disease turns people inward.

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It throws so much into uncertainty.

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And you think about things you
had never thought of before.

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I was an athlete before this.

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I played football and lacrosse
throughout college.

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I had
some amazing coaches

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who taught me,

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"We all are part of a team...

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...so you either follow the leader
or you lead."

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I decided that

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I was

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going to play a role in this

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so that my family

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could see

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me fighting.

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ALS was wandering in the wilderness.

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And then you had Ice Bucket.

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And all of a sudden,

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money, people and
awareness poured in.

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I gave my money

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to the Ice Bucket Challenge

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and then I kind of

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forgot about it for

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three years

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until I was diagnosed.

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We actually put out a national poll.

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And we asked the question of:

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"Do you know what Ice Bucket Challenge
was going to fund?"

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And more than half the people
said they had no idea.

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So not only did they not
know what ALS was

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they didn't even know what they
were dumping ice on their heads for.

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So the Ice Bucket Challenge

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raising $100 million is impressive.

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But if we approach the government

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in the right way,

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we can get $100 million
every year.

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When you're told that

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the world you believed
you were going to live in

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is no longer there

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you have to either choose to curl up
into a ball or act

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and for better or worse

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Sandra has described me as a Golden
Retriever who sees a bright, shiny object

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and runs at it

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and this was a bright shiny object
that I had to run at.

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That's how you do life.
You just keep moving.

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Keep trying to make a difference.

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It's got moments of beauty where you

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reflect on life and enjoy things
in a way that you otherwise wouldn't.

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But it's got those other moments of
frustration where things you used to do,

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simply like tying a tie this morning...

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You know my brain and hands
know exactly what to do

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but the actual mechanics
of making it happen

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you have to think through now.

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The crazy part is we're running faster
and harder now than we ever did before.

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But it is being done in a way that

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you wake up every morning and say,

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"This is good. This is right."

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"I'm exhausted, but this is
what I want to be doing."

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This is pretty much the extent of
my walking ability.

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After a couple of falls

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I quickly learned to
not push myself.

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And you have to wait five months
to access disability benefits.

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That is a huge, huge thing.

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You end up losing either
a quarter or a half of your life

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waiting for those benefits to come to you.

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And that means that families go bankrupt,

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that means that families
can't get caregivers...

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the repercussions are real.

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For Steve Gleason,
Social Security Disability Insurance

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has been a passion of his for a while.

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Once I was diagnosed,

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we learned I could apply for
Social Security Disability Insurance.

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But it would take at least five months
before I could receive it.

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Fortunately, I had the money
to cover the cost of living

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but most people--families--are
not so fortunate.

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The five month waiting period is simply
and completely unnecessary.

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And almost always contributes to
near financial ruin.

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Even with someone like Steve

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advocating for something that
seems to be a no-brainer,

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it doesn't happen

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unless the entire community
gets behind it

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and pushes every single person
to embrace it.

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Steve came up to me and said,

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"I don't know how you do the
things you do in D.C.

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...but you better pass this damn bill."

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Brian says to me,

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"Dan, I just committed

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to Steve to get this done this year."

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We personally contacted

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every Representative

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and every Senator.

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Five months is really a big deal here.

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Can you put the hood on my head?

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Who thought this was a good idea?

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I look at myself doing better

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than anyone ever with this disease,
who has a fast-progressing version.

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And I think, if I was Brian
looking at Chris,

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I would feel angry that that's not me.

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And Brian holds those victories up
like they're his own.

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I'm here.

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And I can honestly do everything
I want to do still.

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That sheer hope

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that this can be a different narrative

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that's everything.

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Radicava time!

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I could use a refill.

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Always.

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Push. Pull.

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You have to get a shot of the

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award that I got from a PR agency

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that was called the
"Fuck Yeah! Award."

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Remember, don't breathe
on it when you do it.

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No, my heart is on the other side.

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I can't keep up.

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I thought this scooter was supposed
to be about walking together.

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You walk too slow.

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We are more than willing

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to take the risk

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of experimental treatments

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knowing that it may not be

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successful for us.

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And then, what happened when
the trial ended?

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We truly feel

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alienated and ignored

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by the FDA.

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At what point

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do you apply humaneness and empathy

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to the hardcore science that you are using

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to create, develop,
and approve treatments?

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We are fighting history here.

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We either
remake the fight against ALS,

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or

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we will die trying.

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That last sentence right there.

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You had promised to be flexible.

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You actually put forward

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the clinical trial guidelines

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that said you would be more...

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Yes.

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It isn't really a whole new one.

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I'm optimistic this will be fast.

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I'm always fast.

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Watch this.

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11:00.

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At the time Brian was diagnosed

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he was an Assistant United States Attorney

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This is my final closing argument...

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I am.

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That's the whole point.

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What?

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I have to admit that for the hearing

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even though we believe we will find a way.

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The reality is, everyone dies from this.

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Period.

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Me included.

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Let me help you calm down a bit.

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I know. But I need you to be.

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Don't do that. That will not help us.

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Do not let another generation of patients
die in the pursuit of the perfect.

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Instead, let this generation be
the first to live.

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My name is Brian Wallach.

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I am 40 years old.

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I have been fighting ALS for four years.

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This is our closing argument
for our lives.

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We want to live.

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You have the power to make that possible.

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Holy fuck.

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ACT for ALS just passed the Senate.

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It means it will become law.

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The good news though is...

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One, I'm alive.

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So I've already beaten the odds
on that one.

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Two,

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I'm gonna eat sushi tonight
for the first time in 6 months

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So I am fucking stoked
about that.